There is more than one "big country heavy equipment", and there is an important innovation achievement of offshore wind power on the site - "10MW offshore wind turbine". According to reports, its birth has historically introduced China's wind power into the "double-digit era",
marking that China has fully possessed the independent research and development, manufacturing and installation capabilities of 10 megawatts of large-capacity offshore wind turbines, ranking among the world's first phalanx.What is the "Venus of Life Sciences"? Why did this conference launch an international academic community for special cases?
Alzheimer's has long been thought of as a neurodegenerative disease caused by aging, so what explains diagnosed cases in people in their 20s and 30s? Serious lack of sleep can lead to health damage and even life-threatening,
why overseas a patient with Movan syndrome did not sleep for several months but everything was normal? After accidental brain injury, patients with severe depression for more than 10 years have completely healed themselves, and patients with untaught painting after brain surgery have made rapid progress, why?
Today, at the 2024 Global Rare Disease Research Forum and China Rare Disease Research and Translational Medicine Conference, Tianqiao Brain Science Research Institute (TCCI) announced the launch of the Special case international academic community, and released the "Explore the Gold Star of Life Science" funding support program.
Explore the "Venus of Life Sciences"
It was Professor Zhao Chongbo, vice president of Huashan Hospital and a renowned neurologist, who proposed the concept of "exploring the Venus of life sciences". He said: "Venus rotates in the opposite direction to the other planets in the solar system, and the study of it has made many astrophysical advances. I'm confident that in the life sciences, this kind of personality research will yield surprising results."
Professor Xu Yifeng, director of the Brain Health Research Institute of the National Medical Center for Mental Illness and community expert committee member of the special case community released on behalf of TCCI, said that special cases are different from rare disease cases and difficult and complex disease cases,
the key is whether it is special enough, and whether the research on this can find new vision and blind spots in basic research and clinical research, and produce new breakthroughs.
He introduced that the first batch of pilot internal collection of the program received more than 20 domestic and foreign cases, and under the premise of ensuring compliance with medical ethics regulations, five were approved by the expert committee.
The object of one of the research projects is a patient with congenital complete deletion of the corpus callosum, the function of the left and right brain is split, but for decades of learning, work, life and normal people have no difference,
this phenomenon is very special - the vast majority of patients will appear intellectual disability, paralysis and other serious symptoms. The study of this case provides a rare opportunity to explore the compensatory mechanism of the left-right brain connection and understand the plasticity of the brain.
Another project is an autistic patient with extremely superior photographic memory ability, looking forward to in-depth research to uncover the mystery of how the human brain achieves super memory ability and explore the possibility of cultivating more powerful brains.
The same batch of funding also received three follow-up projects, such as narcolepsy and schizophrenia co-morbidity, early-onset temporal lobe dementia, looking forward to studying these special cases and exploring new ways to treat brain diseases.
Xu Yifeng introduced that the community organized an expert committee to review the cases reported by doctors every three months, including whether they have enough particularity and research value, whether they are true and in line with medical ethics.
The funded projects are divided into three levels, the follow-up type is less than 50,000 yuan, mainly to collect complete case data. 100,000 to 300,000 yuan for research, more than 300,000 yuan for in-depth research, funding collaborative research by doctors and interdisciplinary scholars.
He revealed that the founders of TCCI, Chen Tianqiao and Mr. And Mrs. Luo Qianqian, especially proposed to provide additional humanistic care such as economic subsidies for special patients who cooperate with the research.
The second collection of the program will be launched in July, and the collection scope includes current and past case clues in neurological and psychiatric fields. Interested doctors are welcome to log on to UniCaseHub.com.cn, understand the relevant rules and submit applications, actively provide clues, and participate in case exchange and discussion.
In addition to financial support, the community also provided academic support for selected special cases, including organizing international case report sharing and academic seminars, and supporting the publication of medical papers.
The community will use technical means to strictly protect the privacy of cases and data security, and will also invest in self-developed AI models to strengthen research and analysis capabilities.
It is expected by domestic and foreign medical circles
During the community preparation and internal collection of the project, it has received high interest and praise from the medical community at home and abroad. Zhao Min, Xu Yifeng, Zhao Zhongbo, Wang Zhen, Yu Xin, Wang Xiaoping,
Chen Liang from Huashan Hospital (National Medical Center for Neurological Disorders), Shanghai Jingwei, Sixth Hospital of Peking University, and Second Hospital of Xiangya (National Medical Center for Mental Disorders),
And Qian Xiang, Deng Huiqiong and Zhang Lin from Stanford University and the University of California, Davis, 10 well-known neurological and psychiatric clinicians were pleased to be invited to serve as the first group of expert members of the community.
